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Rare Disease
Patient Recruitment & Research
THG provides HIPAA-compliant, US-based rare disease patient recruitment and qualitative insights for Pharma and Biotech.
Rare disease research faces a critical problem:
finding enough patients to run a valid clinical trial.
Finding patients for rare disease research is not a marketing problem, it is a survival crisis for your R&D pipeline. When your target is a 1-in-a-million diagnosis, traditional digital scraping is a failure. AI is brilliant at data modeling, but it is a total failure at building the trust required to bring a person into a clinical trial.
The Henne Group (THG) acts as a steady lighthouse in a sea of market volatility. We provide the high-compliance, person-focused infrastructure required to find the hard-to-reach patients you need, ensuring your study proceeds on schedule and meets strict FDA requirements.
Why THG
100% US-Based Operations
All THG call centers and customer service teams are located in the United States, fully complying with FCC mandates for handling sensitive information.
Strict HIPAA Compliance
We use Multi-Factor Authentication (MFA) and Encryption at Rest for all electronic Protected Health Information (ePHI).
Culturally Competent Staff
Our interviewers are trained to speak with vulnerable populations respectfully, which drastically reduces patient dropout rates during long trials.
Targeted Solutions Across the Life Sciences
Industry Sector | The Core Challenge | The THG Solution |
|---|---|---|
Hospital Systems | Tracking how a rare disease impacts a patient's daily life over many years. | We run longitudinal tracking and real-world evidence (RWE) studies to measure functional outcomes and quality of life. |
Biotech & Academia | Securing accurate data from edge-case patients to prove a concept to investors. | We provide translational recruitment and study design that delivers the rigorous proof needed to secure venture funding. |
Pharmaceuticals | Finding enough niche patients to meet FDA trial size (N-size) mandates. | We locate and recruit verified rare disease patients to keep Phase II and III clinical trials on schedule. |
Infrastructure is Certainty
In a market defined by the Inflation Reduction Act and shifting Medicaid rates, certainty is the only currency. High-compliance recruitment requires more than a database, it requires a secure, linked systems approach that respects the psychological landscape of the patient.
We do not just "source" names, we build the bridge between clinical necessity and the person-focused reality of care.
Secure your R&D pipeline. Contact THG for a direct consultation or a free custom proposal for your Rare Disease recruitment drive.